Lewy Body Roller Coaster
Welcome to our podcast about living on the Lewy Body Dementia roller coaster- a podcast for Lewy Body Dementia patients and their families presented by Lewy Body patients and their families.You will hear firsthand, the ups and downs and twists and turns of Lewy Body Dementia from families directly affected as we will share our support and experiences on all things Lewy Body.lewybodyrollercoaster@gmail.com
Episodes
135 episodes since 2020
Welcome Back After Our Summer Break
Welcome back!Curry shares how his summer went with his LBD causing a few hospital stays. He also shares some important information about Hospice and Narcan Nasal Spray.Four years ago we uploaded and published our first episode. It is ju...
September 13, 2024
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Season 5
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Episode 17
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36:19
Navigating Symptoms and Finding Joy with Ray Augusti- Part 2
Welcome back to part 2 with our friend Ray . In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares h...
June 25, 2024
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Season 5
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Episode 16
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33:53
Navigating Symptoms and Finding Joy with Ray Augusti- Part 1
Welcome Ray this week.In this episode, we tackle the complexities of managing Lewy body dementia, from handling tremors and balance issues to dealing with unique symptoms like a persistent runny nose. Ray shares how activities like Rockstea...
June 18, 2024
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Season 5
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Episode 16
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23:11
Jackie's Story: From Routine Procedure to Cognitive Crisis
Have you ever wondered about the hidden cognitive risks tied to everyday medical procedures? Listen to our latest episode featuring Jackie Babcock-Brown, who shares her powerful journey with Lewy Body Dementia. Diagnosed at just 55, Jacki...
June 10, 2024
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Season 5
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Episode 15
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50:01
Navigating Sleep Disturbances in Lewy Body Dementia: Practical Tips and Community Support
This week, Curry and I share about REM Sleep Disorder and the importance of having your loved on video tape your sleep patterns. This episode also digs into the frustrating journey of finding effective sleep aids, featuring p...
May 28, 2024
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Season 5
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Episode 14
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32:53
What Would You Want Dr. to Say?
This week we share comments from question posted in the groups on what you would have wanted the doctor who diagnosed you to tell you about LBD - more than to just get your affairs in order?Thank you all for your continued support and p...
May 15, 2024
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Season 5
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Episode 13
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32:07
Navigating Life with Lewy Body Dementia: Carl Ladd's Journey of Vulnerability and Resilience Part 2
Welcome back to the fold, where the tapestry of human experience is rich and complex, especially when joined by individuals like Carl Ladd, an award-winning educator who's bravely navigating through the turbid waters of Lewy Body Dementia. With...
April 30, 2024
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Season 5
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Episode 12
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36:12
Navigating Life with Lewy Body Dementia: Carl Ladd's Journey of Vulnerability and Resilience Part 1
Welcome back to the fold, where the tapestry of human experience is rich and complex, especially when joined by individuals like Carl Ladd, an award-winning educator who's bravely navigating through the turbid waters of Lewy Body Dementia. With...
April 23, 2024
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Season 5
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Episode 11
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32:36
Curry's Fall and Hospice Story
Welcome back! This week, Curry shares with us about his recent medical it and how he is moving forward with his medicine and health care. Curry shares that the doctor signed him up for hospice and describes all that they are going to do to help...
March 26, 2024
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Season 5
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Episode 10
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38:38
LEWY BUDDY AND CAREGIVER MEET UP and Curry updates his health
Welcome back everyone!This week, we wanted to share about the Lewy Buddy and Cargiver Meet-Up happening September 14, 2024 in Caney Kansas. Gather 'round the warmth of our virtual fireside, as Linda and I, in a rare moment of quiet ...
March 17, 2024
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Season 5
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Episode 9
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42:23
Navigating Love and Resilience: Bill and Linda's Journey with Lewy Body Dementia
Bill from Central Texas never foresaw becoming an expert in resilience and caregiving, but life's unpredictable turns have made him just that. As he opens up about his and Linda's encounters with Lewy Body Dementia, you'll find yourself moved b...
March 01, 2024
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Season 5
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Episode 8
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40:14
Resilience in the Face of Lewy Body Dementia Shared by Sam and Tracy-Part 2
Welcome back to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life.A b...
February 13, 2024
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Season 4
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Episode 7
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26:33
Resilience in the Face of Lewy Body Dementia Shared by Sam and Tracy-Part 1
Welcome to the podcast Sam and Tracie. Sam has LBD and shares his path to diagnosis. Tracie shares some great caregiver tips. Sam shares helpful uplifting ways he deals with his diagnosis and as Curry says...lives his best life. A big s...
February 06, 2024
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Season 5
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Episode 6
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46:00
Navigating the Tides of Early-Onset Lewy Body Dementia with Miriam Owens
When Miriam Owens bravely faced her diagnosis of Lewy body dementia at 54, it was a stark reminder that our health can take unexpected turns. Her story, rich with challenges and resilience, is the centerpiece of our latest episode, offering ins...
February 01, 2024
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Season 5
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Episode 5
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56:41
Questions and Comments from the Groups-Another Fireside Chat
Welcome back! This week, it's just the two of us as we share some helpful comments on a few questions raised in the groups.... One of our fireside chats as Curry likes to call them. We discuss show timing versus fluctuations, how to deal with h...
January 23, 2024
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Season 5
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Episode 4
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41:15
Teepa Snow Shares Ways We Can Access Her Great Programs- Part 2
Part 2Welcome back to the podcast, Teepa Snow! This time we wanted Teepa to come on and share all she has been up to as well as share all the ways you all can access her information. She discusses her PAC- Positive Approach to Care, her Tee...
January 16, 2024
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Season 4
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Episode 3
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34:39
Teepa Snow Shares Ways We Can Access Her Great Programs- Part 1
Welcome back to the podcast, Teepa Snow! This time we wanted Teepa to come on and share all she has been up to as well as share all the ways you all can access her information. She discusses her PAC- Positive Approach to Care, her Teepa Talks, ...
January 09, 2024
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Season 5
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Episode 2
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30:26
Sleepless Nights and Internal Tremors
Welcome to 2024!This week, it's just Podcast Linda and Curry with a fireside chat. Curry's Lewy symptoms have been pretty bad the last three weeks or so and he wanted to share. We discuss how he has gone over 34 hours without sleep , intern...
January 03, 2024
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Season 5
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Episode 1
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44:11
"I Miss Me": A Poem From Someone with LBD-Rick Phelps
This week its just Podcast Linda reading a poem written by one of our members, Rick Phelps. Rick wrote this poem in 2016 and gave us permission to share ith our listeners. It really gives insight from someone with LBD and how he and many fe...
December 05, 2023
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Season 4
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Episode 14
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7:50
A Quick Update: Curry's Hallucinations Are Back and Podcast Linda's Alien Invasion
This week we wanted to take a few minutes to update y'all on how we are doing. Curry's hallucinations have come back but he explains this has happened before and he was overstimulated with many visitors over the last 2-3 weeks so that is one fa...
December 05, 2023
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Season 4
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Episode 13
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31:24
Perspectives from a Male Care Partner- Chris Gungor
Welcome care partner Chris Gungor. We get to hear a male care partner's perspective as he cares for his love- Jamie Sue. Chris shares with us Jamie Sue's journey to get diagnosed and how they both manage her symptoms now. He also shares m...
November 12, 2023
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Season 4
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Episode 12
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56:46
Understanding and Accepting Diagnosis From Two Perspectives- Antonio and Barb
Welcome Antionio and Barb G. This week, Antoni and Barb share with us their journey to diagnosis and beyond. They openly share some of Antonio's symptoms and then Antonio shares how he still lives a good life even with LBD. Very heartwarm...
November 12, 2023
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Season 4
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Episode 11
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1:11:19
A Doctor's Thoughts on LBD- We asked Him Many Burning Questions
This week, welcome Dr. Jason Cohen. Dr. Cohen is a dementia specialist who answered many of our burning questions about LBD. We are sure some of our questions to him are some each of you would have asked. He said he would come on again, so ...
October 23, 2023
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Season 4
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Episode 10
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45:32
Diagnosis Denial and How Support Groups Helped
This week welcome Tom and Dorie. Both Tom and Dorie discuss the symptoms Tom had that prompted a doctor visit. Tom shares with us how he overcame denial after being diagnosed. They both share with us how they feel about attend...
September 19, 2023
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Season 4
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Episode 9
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54:08
Stages and Brain Foundation
Welcome Back Podcaast Family!This week, we share our thoughts on whether there are stages of LBD. There are so many different sites that speak of anywhere from 3-7 stages. We give our two cents on stages and then discuss what it was like fo...
September 13, 2023
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Season 4
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Episode 8
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49:18