Lewy Body Roller Coaster
Lewy Body Roller Coaster
Lewy is in Charge Right Now
Hello Everyone! Thank you for your patience.
Curry shares this week how he has been on a decline for the last few months and shares, in details, how Lewy is affecting him right now. We have a special appearance from his wife Linda as she helped him describe his current symptoms.
Should you wish to bless us with your support you can use links below.
Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
We have listed all present and past Patreon and Go Fund Me supporters in the Announcements page of the Our Journey with Lewy Body Dementia and our Lewy Body Roller Coaster Podcast Pages.
We will still give shout outs each week but, we posted supporters under Announcements on our Facebook pages.
Thank you for listening each week.
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.
If you have a topic you would like us to discuss or wish to share your thoughts on any episode, please email us at lewybodyrollercoaster@gmail.com
Welcome back podcast family.
Speaker 1:Yeah, welcome back y'all.
Speaker 2:And just a quick shout out, as we always like to do, to everyone for your continued support and patience with us getting these episodes out.
Speaker 1:You know we've had some time getting this one here kick-started, but we're going now. Anyway, I want to thank you all for being so patient and supportive of us.
Speaker 2:Like Linda said, yeah, and, as always, please feel free to share the podcast name with your doctors and family. I think hearing from those with the disease and caregivers really, really helps people. And ask Curry some questions, curry, so you don't have to worry about doing too much reading If you'd like to be a guest on a show on a show I think I'm doing a TV show now. People would not want to see what we look like when we're recording, right, I'm just saying but anyway, you can contact.
Speaker 1:I have to get out of my jammies.
Speaker 2:Yeah, I know Me too. We go to the jammies in our Zoom meetings and one day I was like maybe I'll just fix my bangs and just go Right. Nobody cares. But anyway, if you are interested in sharing your story or helping us help others, you can send me an email, a messenger, through Facebook or at louiebodyrollercoaster at gmailcom. First and foremost, we're not giving medical advice. Rather, we're just sharing our open and honest feelings and thoughts as we live with Louie Body Dementia. So we're going to do just an overall shout out to everyone who has supported us from day one. You bet.
Speaker 1:We thank each and every one of y'all.
Speaker 2:Yeah, so we're not going to call out any names, but you all know who you are and we really appreciate all the help you've given us to keep this podcast going.
Speaker 1:You bet.
Speaker 2:All right. So, as Carter would say, it's just me and him today doing a fireside chat because it's been a minute since we recorded. So first I want to just ask you how you're feeling, share with people how you're feeling, because I know you've been doing such a great job of posting on Facebook how you feel, and it's just I don't feel good yeah. I'm in awe that you're still doing that, so tell us, share with us what's going on.
Speaker 1:I just had bad brain fog and I can't hardly remember anything. Apparently, I'm doing things and saying things that didn't really happen and I'm going to have Linda she's here with us today, my Linda, along with Linda and the podcast, but I'm going to let Linda step in and answer a little bit about that.
Speaker 2:Yeah, so thank you first of all, linda for jumping on, but we talked before we started recording and just the importance that, because you're having trouble remembering that, she could share some of the things that you're doing yeah, because I can't remember what happened yesterday, you know, and some of the things that she tells me goes on.
Speaker 1:I just think, shake my head and think how did that happen? You know?
Speaker 2:Yeah, well, you do have hospice coming more now.
Speaker 1:Yeah.
Speaker 2:Three times a week. Three times a week, that's for the nurse and the aid.
Speaker 1:The nurse comes three times a week and the aid comes three times a week, okay. And then the caseworker she was here the other day. She comes about every other week, and the preacher comes about every other week.
Speaker 2:So have they said anything to you, or you, linda? First of all, linda, thank you for coming and helping Curry today. First of all, linda, thank you for coming and helping Curry today. Have they said anything? I guess?
Speaker 1:they can see a change in your cognition. Yeah, she said. She asked if I wanted to come in a third time during the week and I said, well, yeah, and she said yeah, we could decline. We really need to and I said well, yeah.
Speaker 3:And she said yeah, with your decline, we really need to.
Speaker 2:And I said okay, she said it's obvious the signs of decline, yeah, yeah, and I had asked Linda and Kari did it start two or three weeks ago? But you think it started slow a couple months ago. Yeah, yeah, it's just been slowly a change. So what symptoms do you have that are back, that you kind of thought you had under control?
Speaker 1:the hallucinations the hallucinations for one thing thing and delusions. I'm having quite a few periods of delusion. I might tell Linda I'm riding in the car with someone, or I just got back from town with someone, stuff like that, and to me it just is like it really did happen. And it turns out I may have been sitting here at the house all day and didn't even do anything.
Speaker 3:He thought we made a trip to Texas and back, but he couldn't remember who we rode with.
Speaker 2:Yeah, you want to share Linda, with some of the things that you were sharing before we started of. Like, sometimes he's asking the same thing over and over and like. What kinds of things is he doing or saying?
Speaker 3:He always thinks that somebody's been here when they haven't other than, you know, the hospice people coming in. He thought a man was here measuring for something. One day the hospice nurse was here when he was asking about that because he thought the man was going in and out of the house while they were here. Right, just, I don't know. He thought we had another dog. He thinks people walk up to him when he's out on the porch and visits with him when they're not there. Just different things. He thought we were taking care of our grandson while his mom was out of town, and we weren't. Our grandkids are all grown.
Speaker 1:I do remember thinking that Sean, our grandson, lives in Texas. I remember thinking he was here the other day.
Speaker 2:Yeah, well, you did do a lot with him. You know, you guys built that chicken coop and all that when you were in Texas. Did you hear Roxy bark? Just as she said you thought you had another. No, you didn't. She barked in the background, just as you said that, linda, and I'm like, oh, although I've told Carrie I'm going to ship her off to you, send her over, she's better behaved in your house with all your animals and your cows and your goats than in my house. So, curry, are you having conversations with people when you think they're in the house and do you remember it afterwards, or no?
Speaker 1:Usually not no.
Speaker 3:He won't remember the conversation. He just thinks that he talked to someone. No, he won't remember the conversation, he just thinks that he talked to someone Right.
Speaker 2:Mm-hmm. So Linda had mentioned that I had asked her if she could come on and share, because other caregivers first of all. They're going to be so excited to hear your voice, linda. We've kept you hidden for what? Three years, five years, almost. Curry. Yeah, I know, um, but we know you do it all. You do so much behind the scenes for him and I did ask him. You know, has she whacked you across the head because you keep asking the same thing with that frying pan? So how are you, how are you dealing with that, linda, when he continually asked the same thing with that frying pan? So how are you, how are you dealing with that, Linda, when he continually asked the same thing over and over?
Speaker 3:well, for one thing, he takes it good-naturedly. I mean, it's, it's he still. He still has held on to that. But I just I just answer him every time either with no, I'm sorry that didn't happen, or maybe it was a dream and I may have to tell him that several times a day, but I just answer him and go on. It's kind of like a kid that's always asking you, following you around and asking why. Yeah, you know I just answer him the best I can and hope that that satisfies him at the moment.
Speaker 2:Yeah, I'm not surprised. You're keeping your personality and your sense of humor, which is great.
Speaker 3:So far that's still intact, yeah.
Speaker 2:What do you want people to know? Curry about what's going on with you right now.
Speaker 1:To know, curry, about what's going on with you right now. Well, my thing is, I want people to understand on Facebook. I used to post quite a bit on Facebook, you know, pretty regularly. But now I can sit there in my chair, my recliner, with my phone in my hand wanting to post something, but yet I can't think of anything to post, you know, and sometimes the thing that I want to post little time at night didn't happen, you know. But I just want people to understand why I'm not on facebook as much as I was.
Speaker 3:Yeah, it's just I can't, and he has a harder time navigating the phone yeah and like the remote control things like that. It's just harder for him to work them.
Speaker 2:So when you do post on the times in the past couple weeks, when you've posted how you're feeling, are you talk texting? I usually talk text. Okay, yeah, because it was. You know I'm like, oh my gosh, you know I'm amazed and then I said maybe he's well, we did have this conversation because it's learned your southern drawl and everything, yeah my phone, especially this new phone, it can put words up.
Speaker 1:before I say it. It seems to know what the next word is going to be yeah, scary, right.
Speaker 2:Yeah, it's pretty neat to be, yeah, scary right? Yeah, it's pretty neat. It's, yeah, it's a good time to be alive as far as technology is concerned and all the help that it can give people, especially people with dementia.
Speaker 1:Um so, yes, and that's another thing I I used to try to answer when I read Facebook and people, when I would read people's posts, usually I would try to answer them or give them my point of view on it, for what that's worth. You know, and a lot of times now I can't even do that yeah.
Speaker 2:Well, don't be upset about that Cause you know you've there's. You've been in the Louis Lowe's before, maybe not not as bad as this one, but people understand because you did post how you're feeling. So people know you're Louis winning right now. You know having a rough time batting him down, so are your essential tremors back. No, just my internal tremors I still have those I don't know why I said essential, yeah, only where they came from internal.
Speaker 1:Yeah and they, they. They normally last about three or four days, and then they'll be gone for for a while and then they come back and you haven't changed any medicines or anything.
Speaker 2:They just.
Speaker 1:That's one of the craziness yeah, crazy someone else was talking on facebook yesterday and answering to one of my posts and they said their interior trimmers have gotten really bad. Yeah, no, and they were at one. I know if I knew anything to get rid of them. And I said I don't have any idea what to do, or else I would.
Speaker 2:Yeah, because you don't even know what's making them start and what's making them stop. Right, how about your anxiety level?
Speaker 1:Oh, I take anxiety meds now. It keeps it down pretty low.
Speaker 2:Yeah, so that hasn't changed. No, no. How about sleep? How's your sleep been?
Speaker 1:What sleep? Yeah, I sleep. We're in bed by about 11.30. Usually sleep by about 12.30. Then I'm usually awake around 2.30 or 3. And sometimes I stay up and sometimes I just go outside and smoke cigarettes with sparky and then come back in and lay back down and we'll go back to sleep. But I just don't get much sleep at all.
Speaker 2:So how are you doing getting up and going out for that smoke?
Speaker 1:Well, I think I do pretty good.
Speaker 3:It's pretty good. It gets harder now, but still able to. Yeah, thank goodness for the mobility chair. Yeah, jazzy.
Speaker 2:Yes, yeah, that jazzy.
Speaker 1:I'd be lost. Without it, I wouldn't be near mobile.
Speaker 2:Yeah, it's amazing how that has really helped you and you just got your recently got your golf cart fixed right.
Speaker 1:Yes, ma'am.
Speaker 2:Yeah, but you're not taking any rides alone on that right now, right I'm only taking it around the block twice okay, you went over and picked up the other day I did.
Speaker 1:I went over and picked up a grandson and got him back over there the other day which is only about four blocks away yeah, right, right, and then where they live there's not a lot of traffic.
Speaker 2:You haven't taken to get donuts yet, oh yeah.
Speaker 1:Is that your bacon?
Speaker 2:donut or something.
Speaker 1:That's the first thing I did the day after we got home. I went and got donuts the next morning, yeah.
Speaker 2:Now, does he do that by himself, Linda, or do you go with him?
Speaker 3:I let him go by himself. I track him. Yeah, I let him go by himself. I track him, yeah, and kind of time him on how long he's gone. Right right, so I know whether to go looking for him or not.
Speaker 2:Yeah.
Speaker 3:We use that.
Speaker 1:Life360, and it works pretty good for tracking.
Speaker 2:I know we talked about that before. Do you have to pay for that, or is that free?
Speaker 1:No, it's free.
Speaker 2:Okay, Well, people should look into that like 360. And it's just on your phone.
Speaker 1:Yeah, it's just an app on the phone.
Speaker 2:Yeah, now, where do you keep your phone when you're riding?
Speaker 1:In the pouch on Jazzy.
Speaker 2:Okay, so you won't lose it.
Speaker 1:I keep my gloves and everything.
Speaker 2:Mm-hmm, yeah, I'm thinking I would put one of those. I forget the tags or something that you put in luggage. Yeah, I forget what they're called. We're considering those yeah because I don't know if they cost money. They cost money to buy, but I don't think they're too expensive. Yeah, I'd look it up, but I don't want to touch any money. I don't they cost money to buy, but I don't think they're too expensive yeah.
Speaker 2:I'd look it up, but I don't want to touch any of the buttons, since I hit all the right ones for this time they got me a bed alarm.
Speaker 1:We just haven't got it going yet.
Speaker 2:Okay, so Linda knows you're getting up at night, yeah, yeah, because you've fallen a couple times since we last recorded what, yeah, what, you know what happened then, like where was it?
Speaker 1:well, one time, uh, I don't know whether the dogs tripped me going out the back door or if my feet just got tangled up going out the back door and then the other time and and I fell outside, fell up against the chairs. That's the only thing that hit me from going all the way down was I grabbed hold of a chair on my way down and then the other time I think I fell here in the living room. I'm not sure.
Speaker 3:Yeah, you fell in the living room and fell into the couch.
Speaker 1:Fell into the couch.
Speaker 3:Luckily, instead of falling away from it.
Speaker 2:Yeah, and then you had a jazzy incident once, right Like it got stuck or something and slammed you into the oh yeah, yeah, it sure did.
Speaker 3:He rearranged the furniture, yeah.
Speaker 1:I can just imagine my jazzy's got this little thing here. Extension for the throttle.
Speaker 2:Yeah, like yep.
Speaker 1:And I pulled up there to the pitching table and I was rolling my cigarettes while I was doing. And when I got through I got ready to back out and I turned the Jazazzy on and it went straight forward. I mean, it was in fast mode too and what had happened is, when I got, when I got under the table and I turned the thing off, the throttle stick was stuck in four. Oh no. So when I turned it on it was in high speed and I mean it scooted the table four to five, four or five foot so you were blowing a china shop oh yeah, I had a big cut on my hand.
Speaker 2:Oh lord is that healed now? Yeah, it's healed yeah, yeah, because I remember you showing us you took a pretty big gouge out of that.
Speaker 1:Yeah, sure did yeah.
Speaker 2:Just keeping your wife on her toes? Uh-huh, you know. So let me ask you this you know, five years ago, which you know, you admitted that you thought I was crazy. I'm over it, I'm not upset about that. I was over it. I'm not upset about that anymore. I was never upset. But so five years ago, when I sent you that message and then you know, we started doing these podcasts, and then we started doing once a week, then twice a week, and I think we have like six a week now. Uh, zoom, support meetings, yeah, what, what has that all meant to you? Like, what do you want people to know about what that meant to you?
Speaker 1:well again. I used to talk quite a bit during them and now I don't. I basically sit and listen to everyone else a lot now I I don't, I don't, I don't really chime in much, I just don't but they, but they keep him going.
Speaker 3:Yeah, they keep him going.
Speaker 1:They keep me going. It's a good thing that we still got him, because they do give me something to do and I do still learn something from every Zoom Mm-hmm.
Speaker 2:So yeah, because it's like we said not, you know, we don't you and I and Megan and Sam like just pushed a button to open the meeting. So it's not you know, it's not like we have an agenda, it's just people sharing their problems and other people sharing how they handle those problems.
Speaker 1:Well, just like we had another new couple join us about two weeks ago and then in the Louie Budd louis buddies group on thursday afternoons we had a lady, a new lady, start there, you know. So people are still still coming to us and finding us. And still the louis body, uh, rollerer Coaster Facebook group, it still has six to nine people every day joining. The Our Journey group still has a couple each day, sometimes more, but the Roller Coaster group it's just going like gangbusters.
Speaker 2:Yeah, I think when you, because if you type in Louie Body instead of our journey, like Louie Body comes up first. And we've said this many times, like we know people are, you can be well camera shy or microphone shy, like to join a Zoom, and you can just come on and we'll be like you don't even have to turn on your mic or your camera, we'll just welcome you and you can listen in and see how it is. And I'm pretty sure we have a pretty 100% track record of people come back. We don't scare them off, because we do. We come in laughing, we talk about serious things. Sometimes we're just catching up in each other's lives, which is amazing, because you, what is the, what is your Zoom family meant to you, the people you've met?
Speaker 1:Instant friends, instant friends and instant family members. I feel like everyone in the Zoom meetings are my family, and I think of each one of them that way too.
Speaker 2:Yeah, family, you want to be around.
Speaker 1:Family. I want to be around, yeah, yeah.
Speaker 2:Yeah, and how about? What are your thoughts on this crazy podcast that we're still getting 250 or more listeners a week even though we've, you know, kind of had the summer down, which? I know, I know you, I know we both are stressed out that we don't do one every week now, but people understand and we've been pretty good with the holidays having a downtime during holidays in the summer.
Speaker 1:And I hope this one, they'll understand why we've been so sliding on them. Yeah, it's been rough.
Speaker 2:Yeah, that's you know, and true confession that you know I've been texting his wife, linda, and you know Curry will send me. We've got to get to recording. We've got to get to recording and, like I know, when you're having a bad day by what you post or the fact that you don't post, um, because you know I'm your little sister now, so I'm pretty much got your number, buddy, but, um, I felt like I've been walking this fine line where I want to protect you.
Speaker 1:Yeah.
Speaker 2:Because that one episode we recorded where you, you listened and then you were really upset and you wanted to apologize because you sounded like you were drunk.
Speaker 1:Yeah.
Speaker 2:So that's you know. I've been walking, you know, do it? Should we? Should we not? Should we? You know, just because I know how you upset you are the last time that you sounded drunk, but you sounded.
Speaker 1:I think I did too.
Speaker 2:Oh were the last time that you sounded drunk, but you sounded. I think I did too well, you, you sounded tired to me, yeah, yeah. But then we said, maybe that's if you were like that when you went to the er for the first time and they thought you were drinking, you know, you can see, because, um, that's what louis louis does to you yeah um and I tell you the, the hospice gals have really they've just been terrific for me and for Linda.
Speaker 1:they really have been Shoot. I don't know where I was going with that.
Speaker 2:Yeah, but don't you wish you would have called them sooner?
Speaker 1:I do, I really do.
Speaker 2:I know it's the practice what you preach, kind of thing, you know, we kept saying you know, and even palliative care.
Speaker 1:Yeah.
Speaker 2:You know, just to get help with that, yeah, but it's good that they're there and they're seeing everything. Now, the way you feel now, do you feel like you've been this low before with Louie?
Speaker 1:No, I don't. No. What's the big difference? Uh, I think I. I think I'm lower this time because of my memory issues and in my hallucinations and you haven't changed medicines or anything.
Speaker 2:No, yeah, because you pretty much had those under control for a long time. Yeah, yeah, but you're like right now you sound really good. I mean, you sound tired, but and I'll text you later and see if you remember doing doing this today you know, right, but and I'm only going to do that just to let you know, it's okay if you don't remember, you know.
Speaker 2:I mean, yeah, if the big scheme of life is not, you know, as long as you're still happy and your wife's not smacking you too much with that frying pan and you know, that just enjoy time with your kids and your grandkids although you have one that's going to Austria.
Speaker 1:Australia. He left yesterday. He got left here and went to Houston, left Houston and went to LA and he missed his connecting flight in LA. So the airlines put him up in a hotel room and he leaves LA like at 11.45 tonight.
Speaker 2:Their time, and he's never traveled like this before.
Speaker 1:No, he hasn't.
Speaker 2:Dang to be young and carefree right.
Speaker 1:Yeah, never traveled like this before, dang, to be young and carefree, right? Yeah, but he was. He was calling, wanting to know what, what, what to do and how to do it good, that kind of thing.
Speaker 2:Yeah, and he is. He is if does he have a friend there?
Speaker 1:you got one friend there.
Speaker 2:Okay, is it? I think I asked you his girlfriend is. I was gonna say is it a girl? Yeah, because guys will do that for girls. Yeah, yeah, yeah. So I agreed, I said, let's, let's get them on, let's let let's record, cause then you know it's going to help you sleep afterwards. It always, it always does. But I feel like you want to. I could feel like through your messages, you just wanted to get on there and share with our listeners and our Facebook. I did.
Speaker 1:I just I wanted them to know why we hadn't been recording. You know, it's always been one thing or another happening yeah.
Speaker 2:And me being over over protective of you.
Speaker 1:Yeah, I just wanted to let them know why you know protective of you. Yeah, I just want to let them know why you know I said I'm my memory is, you know. I can remember saying well, my short-term memory's bad, I can't, I can't. I don't remember a lot, but now I can, I can say it and I mean it deeper it it's gone a lot deeper than what it was.
Speaker 2:So your short-term memory has gotten worse.
Speaker 1:Yeah.
Speaker 2:What about your long-term memory?
Speaker 1:It's still pretty good.
Speaker 2:Yeah, that's crazy right.
Speaker 1:Yeah.
Speaker 2:But you know, for five years you told me you know I've been down like this. I'm just going to ride it out to you. Yeah, years, you told me you know I've been. You know I'm down like this. I'm just gonna ride it out to you yeah till you come back up. What's the longest you had to ride it out? Because if you've been fighting this for the last two months or several months, yeah so you're still on the ride yeah yeah, I have no doubt you're gonna pop, pop back up well.
Speaker 1:I do you do. I don't think I will yeah why do you say that? Just the way I feel with the symptoms. I just don't think I'll bounce back from this one well, I'm rooting for you.
Speaker 2:I mean, we all know that you don't bounce back to where you were. Right, you know, but you do bounce. You're doing a podcast right now.
Speaker 1:Yeah.
Speaker 2:Which is amazing, right yeah.
Speaker 1:Yeah, but my wife had to come in here and tell you what the things I've been doing, because I can't remember them all. Yeah, you know. I can only remember one or two things.
Speaker 2:Yeah, and, like I said, try not to let it upset you. And I didn't. Yeah, and that's what's amazing about you. You have always kept your humble personality, you know, and that's, and for people that last year at Keeney that got to meet you you in person, I hope you know what that meant to everybody and what you mean to everybody.
Speaker 2:With you sharing like you do, because you know, I wouldn't have known basically most of the things jim was going through because he just didn't share with me, because he was trying to protect me and because of you being so open and honest about it all. You've helped so many people on caregivers caregivers understand what their spouse might be going through. And then other people with louis, like you're, you're, you know, you're catch. Your famous saying is you know? Yes, you have this, you just have to learn to live it and learn to live well with it right, so that's so.
Speaker 2:That's what you have to do now. It's yeah, learn to live it, learn to live well with it, right? So that's what you have to do now is learn to live the best you can with.
Speaker 1:I think I am doing the best that I can right now. That's why I don't think I'll bounce back.
Speaker 2:Well, sorry, that's okay. I thought she left the room to get the frying pan.
Speaker 1:No, she had a phone call.
Speaker 2:No, that's all right. That's all right. So, linda, we were just sharing, I was having him share what it's meant to him, like meeting the people and the Zoom meetings. You want to chime in on that, like how you think it has made him feel it's been five years, kari.
Speaker 3:Yeah Well, I don't think I'd still have him today if he didn't have that to rely on.
Speaker 2:Yeah.
Speaker 3:I agree yeah.
Speaker 2:It's just seeing those people.
Speaker 3:Family means a lot to him, but this just a another purpose to to keep him going yeah, that's perfectly said.
Speaker 2:Um, and it really is like if somebody doesn't come to the meeting they miss too, like somebody's contacting them because it really is family. You want to family, you want to be around.
Speaker 1:Um, so I'm hoping people you know consider jumping in on the zooms, just even the listen well, just like we, we've had uh, this happened a few times, but I can right off the bat, I can think of one lady. Uh, right off the bat, I can think of one lady. We all loved her in Zoom.
Speaker 1:And then, all of a sudden, she disappeared and she wasn't answering any of our text messages or anything like that. And then about a year she stayed out, gone for about a year, and it's Elaine and here now Elaine's back. She's just back, just like she was before she left. Yeah, she had to leave and go through some things herself. She said.
Speaker 2:Yeah, and you know that happens with Louie. You know you've gone that downward and you've got to. Just you just can't handle everything. Basically, yeah.
Speaker 1:Yeah, I've seen that she's been posting a lot more, which is which is great I hope she comes back to the meetings because curry doesn't understand her she speaks boston she speaks boston.
Speaker 2:So whenever she talks I I always say curry, did you get that? She parked her car? She speaks Boston.
Speaker 1:So whenever she talks, I always say Curry, did you get?
Speaker 2:that she parked her car, so I hope she comes back. But that's the thing too is we all know. You know sometimes we have somebody who helps us with the meetings. Now that needs to step back for a bit and as long as we know you're okay, nobody's you know, we're just checking, make sure you're okay, nobody's going to hound you and you know to to, uh, come back, you come back. You know when, when you're ready and come back. So all right, my friend, any other final words you want to share?
Speaker 1:not that I can think of. I just I just appreciate everyone, uh, who listens to us, and I hope you all understand why we've been gone so long. It's just been one thing after another and it's I can.
Speaker 2:I will confess that and your wife will tell you that. Just like I said, I'm very protective of you and I wanted to wait till you were sure, sure, sure you wanted to record, especially when I knew you were struggling with some things and your hallucinations. And are any of your hallucinations scary or are they just objects?
Speaker 1:just objects? People talking to people who really ain't there scary, or are they just objects, just objects, that's good. People talking to people who really ain't there, that kind of stuff.
Speaker 2:Is it? Is it normally people that are still alive, or not, or both?
Speaker 1:Both.
Speaker 2:I don't know why that, I just was curious about that.
Speaker 3:Yeah, sometimes it's not anybody he thinks he knows it's just a stranger, walks up and talks to him he thinks yeah and then you just hold a full-on conversation with them yeah okay, and linda, you just sit, you just.
Speaker 2:You know me, I I like to talk, so I I know I always in tried to finish jim's sentences and I was always in awe, linda, how you were so patient with Curry, like when he was trying to find words. So how long does he have these conversations, is it only?
Speaker 3:a few.
Speaker 2:Oh, it's short, they're short, yeah, and you just listen.
Speaker 3:and then he as long as nothing is harming him, you know, or or as long as he's not going to tear something up, I just back off and and let him do whatever you know. Yeah, she's good about that yeah, she you are.
Speaker 2:You have the patience of a saint. Well, really well, you're more patient than me. Put it that way because you know it's it's a heart it's. It's nothing like those with louis body, but you know, care caregiving is, for this disease is not not the easiest. Um, even watch your loved one go through what you're going through, so I don't want any anymore. You don't think you're coming out of it. Just keep just buying your time. It's going to pass. It's going to pass. That's what we have to think.
Speaker 2:Yeah, you know the old saying one day at a time yeah, yeah, yeah, and we've heard that so many times on the facebook pages you know, when people are going through things, just take it one day at a time because, especially with this disease, tomorrow could be the day that you're starting to pull out of it sure could you know. So, all right, my friends and listeners, and Linda, thank you for jumping in today.
Speaker 3:Thank you.
Speaker 2:Thank you.
Speaker 3:Linda, you're welcome, thank you.
Speaker 1:I'm glad you jumped on here.
Speaker 2:Yeah, yeah, I know that meant a lot to him, Linda, that you did that.
Speaker 1:It does did that.
Speaker 2:It does. But you know I totally get you. You you're fine with being in the background because you're just you're. You need to know that you are an amazing caregiver.
Speaker 3:Well thank you, she is just do what looks like needs to be done at the time that's love, my friend, I think you should.
Speaker 2:You should buy her a diamond or an aluminum pot or aluminum pan, it doesn't hurt. Aluminum pan it doesn't hurt. Well, thin aluminum pans, it doesn't hurt so much. Change over to silicone. Yeah, oh my God, there are those like baking stuff.
Speaker 3:Yeah you can get all the baking and silicone now Carrie text me.
Speaker 2:I'll hook you up, I'll send her one from. Amazon, but I want to see a picture of you whacking her upside the head. Whacking her upside the head. Oh Lord, I love you guys. I really do. I don't know if I would have gotten through with Jim and even now afterwards, without the two of you in my life and the people on our zoom meetings and not going to cry.
Speaker 1:We appreciate that.
Speaker 2:No, it's, you know it's, it's love, you know it really. That that's what you feel when you jump on one of those zooms, whether you're new or you've been there for the last five years.
Speaker 1:That's right. Well, we appreciate all you do, yeah well everyone everybody that you do a lot I, I don't, I listen.
Speaker 2:This is the first time in years, carrie, that I opened up to record and I hit all the right buttons the first time.
Speaker 2:I don't think I ever took it off of the recording mood but, but anyway, everyone, we just wanted to check back in um and share with you what's going on with curry, and I'm so happy you got to hear linda because she is, yes, one of the sweetest. She is sweet lady. She may be four foot, I don't know how tall. Four foot, how tall are you? She's five two. You're five two. She may be five two, but she'll put you right in your place, young man. Yes, she does, she does. All right. Well, that's all we have time for this week. Any last words? Curry?
Speaker 1:just thanks, thanks to my wife and thanks everyone for listening and coming to the zooms and just you bet being.
Speaker 2:I feel like I need to play that. Thank you for being my friend right like that tv show.
Speaker 2:Yes, I don't know if I legally we could do that, but if I'll ask andrew to see if he can take the end of the that. Anyway, if you have any topics or you want to come on the podcast, email us at louiebodyrolocosa at gmailcom. Yeah, so if you'd like to help us help other people, that would be great too. And if you want to learn how to be a supporter of the podcast, you can see the episode notes and it's on the top of the feature section on the two Facebook pages. They always change things, I don't know why, but anyway, do you remember your last line?
Speaker 1:This is Corey and Linda. Yeah, signing off.
Speaker 2:Yeah, Until next week. This is Linda.
Speaker 1:And Corey signing off. Yeah, until next week. This is linda and curry signing off.