Lewy Body Roller Coaster

Navigating Love and Resilience: Bill and Linda's Journey with Lewy Body Dementia

March 01, 2024 Season 5 Episode 8
Lewy Body Roller Coaster
Navigating Love and Resilience: Bill and Linda's Journey with Lewy Body Dementia
Show Notes Transcript Chapter Markers

Bill from Central Texas never foresaw becoming an expert in resilience and caregiving, but life's unpredictable turns have made him just that. As he opens up about his and Linda's encounters with Lewy Body Dementia, you'll find yourself moved by their tale of love, challenge, and unwavering commitment. Their story is a beacon of inspiration, guiding us through the murky waters of diagnosis and daily care.

Thank you all for your continued support and patience with us as we try really hard to get a new podcast done- hoping we get one a week but as you all know, Lewy and life sometimes get in the way. We know you all understand and support us anyway and for that we thank you!!! xoxo

Remember...We are doing this for all of us and we thank you from the bottom of our hearts.
Should you wish to bless us with your support for the podcast, you can  use links below.

Copy and paste link, if needed
https://patreon.com/lewybodyrollercoasterpodcast
the GoFundMe page at
https://gofund.me/c416ecb6
 
Thank you for listening. 
Don't forget to join our Lewy Body Roller Coaster Podcast Facebook page.



Support the Show.

Podcast Linda:

Welcome back podcast family.

Curry:

Yes, welcome back y'all.

Podcast Linda:

And, as always, we want to thank you all for supporting us and we provide the links below the episode notes if you want to learn more about being a supporter. And we did really good until last week of getting an episode off every week, so we're going to try to get two off this week to make up for it.

Curry:

And, as always, we want to send out a special shout out to a few of our supporters. This week we've got Ray Croson, Jane Hooper, Anonymous, Nina Berg and all the rest of our supporters. It's because of y'all that we can keep sharing our experiences and information in hopes that we can help each other. So thank you again and remember that if you have Lewy Body Dementia or you're a caregiver and you'd like to be a guest on our show and talk about your journey, or if you're an advocate for someone living with Lewy, please contact myself or Linda Zipula through messenger or email at LewyBodyRollerCoaster at genemailcom.

Podcast Linda:

And in the very beginning we always shared about our Zoom meetings and we stopped doing that for a little bit. So we just wanted to keep reminding people that to consider joining us each week in one of our Zoom meetups. The Zoom link is the same. It's on the top of the page. It's the same link for all of the Zooms we do one Mondays and Fridays at 11.30 Eastern. That's for those seeking a diagnosis, have a diagnosis, and caregivers. There's one for spouses only on Saturdays at 3.00 PM Eastern. One on Thursdays at 4.30 Eastern, just for those with Lewy Body or seeking a diagnosis. Typo there. Are you reading that, kerry? That typo? I got right there, yeah.

Curry:

I got that.

Podcast Linda:

I knew you were going to say something so I beat you to it Again. The links to these are the same and it's posted under the announcement sections in both the Lewy Body RollerCoaster podcast group and then our journey with Lewy Body Group, and we hope everyone listening will consider joining us in one of the Zooms. Also now transcripts are available. If you Google the podcast on Buzzsprout B-U-Z-Z-S-P-R-O-U-T and you listen to it there, you get right to Buzzsprout and there's a spot on there you can click transcript. That's new. So at least for the last three episodes that's been available. I have to do some research to see if I can make it go all the way back. Stay tuned for that one.

Curry:

Okay, folks, today we have someone special. We have a care partner to share his story with his wife, linda, and when I say someone special, I mean special. Bill has become a good friend to me and I cherish his friendship and I'm glad to have him on here. Bill, can you share with us a little about yourself and where you live? Then we can ask you about your Lewy story.

Podcast Linda:

Now let me just say I am now going to become podcast Linda, and then Curry Linda, and then we'll say Bill Linda if we're talking about this Curry. Now you got another episode with three Lindas mixed in.

Curry:

I know that's the second time. Well, you know. You ask me who I am.

Bill S:

I've been trying all my life to figure that out. My first wife she thought that I thought I was God Jr. My second wife was something a lot less fiery, and after that I met my sweetheart. She just called me sweetheart for 32 years. Basically, I'm a 74 year old Christian living in Central Texas, in Hamilton. I married an angel with six kids, and that was 33 years ago. Some people call me courageous, others call me an idiot. I'm just. I guess I'm just a courageous idiot that don't care what they say, because I've really I've gotten much better than I deserve. So that's about all I am, all I'll ever be.

Curry:

I can say for sure that you and I both married up.

Podcast Linda:

Yeah, I did too. I definitely did married up and if you follow Bill I don't know if he posted it on the on our pages about his If you haven't, bill, copy and paste that you're, you're 74 versus 75 year old story that you just, you got it, I got a lot. I'm just going to say post it because it's it's a funny story. So tell us about your Linda Bill Lynn, bill's Linda, your Linda Bill and her Louis story. Yeah, you, you shared. You share with me that from diagnosis to her passing. I know it's a short period of time, but I know you have so much more to share with their listeners that could help those still on their journey.

Bill S:

Well, you know, it all started 11 or two years ago. I've got a. At the time he was six years old, with grandson living with me, and he would always think, mama, why is your hand shaking? And I never noticed it. He did. So, yeah, we went to the doctor and you know he just came up with some. Well, it could be old age, it could be any number of things and she was pretty persistent. So, you know, she got adopted. You know she's got a, a COPD asthma, I mean, she just had a bunch of respiratory problems. So we were always up and down Anyhow, and then, right before that, she had had COVID. So, anyhow, we decided we need to research this a little bit first.

Bill S:

So in the meantime, I'm one of these guys that if there's something going on, I'm always on the web packing around trying to find out everything. I noticed one of the diagnoses was Parkinson's and Louie. So naturally being the doting husband, I said we want to see a neurologist and we went to see one in Waco and it took several months to go see him. Once we saw him, he had her walk down the aisle and do several hand gestures and they're typical tests that they run and he told her she had Parkinson's and by this time I had already done a ton of research. So he said I want to see you when you walk out of here. Go up to the receptionist desk and tell them you want the next available appointment. And we walk out there and I make the next appointment and come to find out it's 11 months away. Oh wow, he was just yeah. So naturally that didn't set too well with me.

Bill S:

So we got back home and I started trying to find another neurologist one that we could get in to see a little bit sooner. Then we did and he had basically the same thing. And all this time I'm doing research. We get back to the family doctor and he said what did they say?

Bill S:

And he said well, they said it was Parkinson's, but I'm not convinced. It sounds more like Louis body to me and he had heard of Louis body but he didn't know anything about it. Naturally I educated him and I told him I wanted to see a movement disorder specialist and there wasn't one on our insurance that I could find. So he had his nurse doing some research and she found one in Round Rock and so naturally I made the first available appointment I could, and we waited, and, waited, and waited, but we finally got around to seeing him and he said yes, it's definitely as definite as he can make it, louis, and that's pretty much how we came up with it. She did it real well for about 18 months, but those last six months was a rapid decline.

Curry:

Okay, man, you answered my question. I was going to ask how long it took you to get diagnosed and what process you all went through. Can you share a little bit about that?

Bill S:

Well, yeah, Like how many cases you?

Curry:

had and all that.

Bill S:

Well, yeah, you know all the hand gestures and what have you, you know, walk down the aisle. He wanted her to sleep study, but she just absolutely refused that. Okay, alright, I will see you soon. You know, basically I pretty much diagnosed her. I just, you know, I had started joining the Zoom meeting and I knew what to look for and, frankly, I knew more about it than the doctor.

Curry:

We see a lot of that.

Podcast Linda:

Yeah, now, so that she didn't have an MRI or a PET scan or none of that. They just gave a working diagnosis off of her symptoms.

Bill S:

Oh no, no, they did PET MRIs, CAT scans, but they just couldn't find anything. You know nothing abnormal. I think they would say nothing abnormal, but I knew something was abnormal.

Podcast Linda:

You kind of did what I did with Jim because I think I started researching before we got his results too. You know the same kind of thing that you went through and so you and I have that alike. You know I just did it and I thought for sure they were going to say, yeah, louis Boddy, when we had our first meeting and he said he had Alzheimer's. And within a month it was changed because I was. You know, we always tell everybody like write down all the symptoms your loved one or you're having. So I was just keeping this running like journal to share with the doctor and pretty much I diagnosed Jim too and shared with the doctor. He's like, oh yeah, I think it's Louis Boddy. So it's I do.

Podcast Linda:

And long time ago, like when we started this curry, maybe two and a half, three years ago, I would say you know, I got it. I just have to believe that his doctor is going to get better at diagnosing this and it's slow. But we're hearing more stories trickling in that more doctors are now becoming aware of it. So keep sharing everyone you know share with. Even if you know your neurologist tells you you have Louis Boddy or your loved one, share that with your eye doctor, your ear doctor, your foot doctor, your family doctor, just you know, and order from the NIH, national Institute of Health. You can get the booklets on Louis Boddy for free. Just have them with you and hand them out, because that's I think it is up to us to educate the non neurologists. Although the newer seems like the new family doctors coming out, the younger ones, like curry, you've had really good experience with them, knowing.

Curry:

I had real good luck with three of them now you know, yeah, especially so they're teaching more and more about it.

Podcast Linda:

Yeah, especially being in small towns. You're always in small towns, you know. So that's, that's encouraging. So, bill, we talked a lot because I was just telling curry, before you know we've talked that I write up scripts and color code it so we all have something to follow. But I always call the person coming on beforehand and just ask them a whole bunch of questions which Bill and I was just saying. By the time I got, I was in the car when I did it. By the time I got home, and several times Bill did I not say I hope I remember that, I hope I remember what he asked me and I don't. So I'm like, when I write up the script I have no idea. So I'm throwing it to Bill on, hoping his memory is better than mine anymore.

Podcast Linda:

But you shared with us yes, there was a from her diagnosis, from your Linda's diagnosis, to her passing. Was it quick period of time? But you were sharing so many great things that could be helpful to other caregivers. That's why I was like, okay, you got to come on and share this. So I'm putting you on the spot. I remembered one. I just wanted to see if you could share with our listeners things that could help other caregivers as they live with their spouses changing sometimes each and every day, hour to hour, for instance. The one thing I remember is you said what you did when she kept asking to go home.

Bill S:

Yeah, when she had wanted to go home sometimes I would, if it wasn't in the middle of the night we'd get in the car and drive around the block. She kept saying I want to go to 422 North Brown and I would say we are, I take her outside and better look at the address on the house. And then she said no, I want to go to the other, 422 North Brown. One time, in fact, she knew there was a Brown Street and gate for which is 30 miles away. One time we got in the car and I drove down Brown Street and gate for just to let her see that our house wasn't there. Oh, but frequently, like I said, I haven't got a grandson living with me. I love racing up We'd get in the car and I'd say we got to take mom off for a ride, and sometimes we'd come back and she'd say, yeah, this is it as a matter of fact. Rarely would she say we just left here. Some of the other things we do is number one once she got on hospice, she was definitely afraid of going into any nursing home and she didn't completely, she was afraid of dying. She just we've got all these grandkids and she said who's going to take care of them when I'm gone. That was her number one concern. So once we started with hospice, I told hospice the word hospice is never mentioned in my house where you're called home health and then I told Linda. I said you know, even though we're across the street from the hospital, it's so hard to get an appointment. I've arranged for the doctors to come to you and she accepted that A lot of times she had asked me which bill shipment are you?

Bill S:

She had I think it's called cat grass or whatever. But she said are you the real bill or are you an impostor? And so first off I invented a hand sign. I'd hold up one finger and that's because that means this is bill number one. And I told her I said you don't tell that other guy, our secret, secret hand sign. So if you see me hold up that one finger, you'll know that it's the real bill shipment.

Bill S:

And if the other guy doesn't hold up that finger when you say who are you, you'll know that he's an impostor. That's a good idea. And when that didn't work sometimes I'd just say I'll go get him and I'd go off into another room and change shirts and come back and say yeah, sweetheart, were you looking for me? And that helped pretty good. Sometimes we'd call one of the grown kids and they'd try to tell her yeah, the real bill is there. And the other one I don't know who he is. I've never met him. It's just anything I could think of at the time to calm her down and let her know that I'm the guy that married you, I'm the guy that loves you and I'm the guy that's going to take care of it, no matter what.

Podcast Linda:

I think they wanted about you leaving the room and changing your shirt. That was a good idea. That's good.

Bill S:

And anything to make a difference, anything to just satisfy her. We went, we went and bought, and that was, you know, that was my, my only only goal. You know, make it easy, make it easy. She was terrified. She didn't understand Lily. She just she thought it was like little worms in her head and she just, you know, she didn't understand it and she thought it.

Curry:

You know I can, I can kind of vouch, not vouch for her, but uh, we're lack of better words to say it. That's what I want to say. Uh, I've not understanding Lily. Uh, I had a very hard time in the beginning of understanding. I had never heard of it, and neither had my wife when, when I was diagnosed, and so we spent a lot of time both of us on our phones doing research, Uh, the day, the day I was diagnosed, uh, and, and it took quite a while for us to understand Lily. So I, I, I know how hard it was on your Linda, uh, cause I know how hard it was on me and my Linda.

Bill S:

Uh, 921, 23 was my first meeting and I've been at almost every one since I. I look forward to those meetings. Uh, some other things that I did when nothing else would work, I would just have to tell her how many, how many you've got, and say to the mayor and nursing home, and you know, sometimes I just have to ball up and and, and you know, be the bad boy, be the big guy, Uh, when nothing else. But I would always try to do it, you know, with, you know loving compassion, and you know, sometimes she wouldn't, she wouldn't talk to me for several hours. But you know, you, just you do what you have to do. That's all I can do. You just do what you have to do, Get as inventive as you can.

Podcast Linda:

Yep, and, and it's it's hard when um and I I think it it came across in the documentary that's soon to be done, I hear. I hope Um, carrie, you got to preview it. I have not been able to watch it yet, but I think and correct me if I'm wrong I think there's a part in there where another caregiver said she just loses it, you know, on her loved one. And then I and Bill, I'm sure you can attest that you feel arable after that happens. I mean, sometimes it's just gets overwhelming every now and then, depending on how, louis rearing its ugly head, and there's times that I mean I've, I've never, I don't think I ever said anything mean the gym, but I guess he, he could tell that I, I was just overloaded, like my patients, and I would feel terrible later.

Curry:

Oh, there's times when my Linda has to tell me. She'll say Carrie, you're being an ass, you know. And that lets me know right then how, how bad I'm being, because I don't realize it when I'm doing it, but I mean the other way around, like have you seen, linda?

Podcast Linda:

Your wife is an assainte in my eyes because I can't imagine her ever. Well, he does tell you, put you in your place. So she does. But have you seen it where she's been overwhelmed with some of your Louis? And just well, I guess. I guess that's her telling you. You know, knock it off.

Curry:

You're being yeah, I've seen that several times.

Podcast Linda:

Do you think she feels guilty about that? I'm saying no, I think she does. I know she does, but I'm. I'm envisioning her with a metal frying pan because I've been in, I've been sitting next to Carrie when I wanted to sit, no, but you do as a caregiver, you feel guilty.

Curry:

She threatens me with a cast iron skillet every now and then.

Podcast Linda:

I got a text or tell her to video when, when she actually wax. You Go ahead, Bill.

Bill S:

Sometimes, sometimes when, when I have to blow up I mean frequently, even before, even when I work, having to blow up, you know I I couldn't let her see me week. I had to always be the strong one and you know, frequently I just I walk back here in the office and I close the door and just sat here and cry like a baby because I didn't know what else. And you know so. You know this is a built disease and if you don't have the emotion, you ain't living. I mean it's just.

Bill S:

It's very emotional for anyone caregiver, patient you know anybody.

Curry:

My Linda. I know she has cried, but she, she told me that I would never see her and I never have. You know, I've suspected it, but but I've never seen her cry.

Podcast Linda:

Yeah, I was just going to say that and me saying that the one time it was towards the end too, it was probably one I didn't realize it was towards the end I went out to shopping and I came back and the minute I walked in the house it was just like this weight like just came back upon me and and I and my back was hurting and I just, I remember my friend Manny was visiting and I was just like the minute I walk into this house like distress, and I turn the corner and Jim was standing right there and I felt terrible that he, that he heard that. But, just as your Linda, I never let I never let Jim see me cry in front of him. I did what Bill did I, I go take a walk. I, you know we, when we went to New Orleans, we, that's when we separated bedrooms I'd go back there and just close the door, lock the door so he doesn't try to get in and see me. So I, you know, it's as much as my, as much as Jim didn't share with me, because I think he was trying to protect me. He didn't want me to know what he was going through. I was protecting him from not seeing me, you know go through it because I wanted to think. You know, I promised him I'd never put him, he'd never go to a home, and we were able to. You know, honor, that it's just.

Podcast Linda:

You know it can be hard sometimes but, bill, you mentioned that when you first started coming to the support groups. And if anyone hasn't, if you're listening and you haven't joined, especially if you or your loved one has recently diagnosed and are having a hard time accepting it, I can't even tell you enough about. You'll come to these meetings. You don't have to turn on. Well, except for the spouses group on the weekends, the Monday and Friday group and even the Thursday group. If you want to come in and just listen, you don't have to turn on your camera, you can listen. Or you can turn on your camera and just say I'm just going to listen.

Podcast Linda:

We just had somebody do that yesterday, that hearing from other people with the disease and their caregivers and how uplifting our groups can be. And, bill, you went and found a group and, like you said it, now can you hear that song behind me? You can't. Okay, good, someone's in my basement fixing up something and I thank God Andrew got me. Thank you, andrew, for picking this microphone. Anyway, bill, you came into the support group looking for information and just share with us Well, we know why you started coming to this support group your thoughts on attending the groups while caring for someone with Louis and or I mean, you've seen the other side of it too, because Monday, fridays, we have people with Louis Share with their listeners your thoughts on attending our support groups or any support groups. It doesn't have to be ours, just a support group.

Bill S:

I went to another group once or twice and it just didn't fit. It was so scripted. This group is so free-flowing and you know I still need these people. These people have become my family and closer than some of my real family. I love these people and they love me and it's just big, just wide open arms. It was refreshing to know that I wasn't in this alone. I learned more than I ever dreamed I could from these meetings. You know, one person would try and one drug and they'd talk about the stat effects and of course that gave me something to go research. So I still need these people. It's refreshing to know that the spouse can survive it, because I honestly didn't think that I could. I saved people that have gone through it for years and years and I still don't know how you survived the caregivers. It's a hard road.

Curry:

You know, we've got a lot of former caregivers in our group who have lost their loved one, who had Louie, and so many of them stayed with the group. It's really surprising to me and I'm thankful that they do, because they help people like you, bill. It's very important and I appreciate you staying in the group because you help people like crazy and that's really appreciated. Some of y'all don't know it, but Bill came over to my house last week. He flew up here from down in Texas and flew into Tulsa, rented a car and came onto the house and we had a real good time. I've got to say I really enjoyed meeting you in person and I can't wait to see you again.

Podcast Linda:

Tell them what you brought you.

Curry:

Oh yeah, he brought me 85, a box, 85 Reese's peanut butter cookies. And how many do you have left? My favorite candy? And there are none left. What?

Podcast Linda:

Yeah, did you eat them all? I did, dang you. I'm not visiting now. That was going to be my. Oh, my goodness, curry was in hunt, oh yeah.

Curry:

Oh yeah, shame on you. Plus, I had that lady that sent me all those buckeyes and I ate all those. Damn it.

Bill S:

Time for another Amazon order at sales.

Podcast Linda:

Give him a little time for his body to digest. But I and then Bill and I talked about this also, like he said, he wanted to stay with the groups just to help. And the same reason why I want to start going back to the Saturday group, because I've been through it and I have some advice for those people going through it and I honestly you know, curry, you know I, bill the same I didn't think I was going to make it out of the grief. I didn't think I was going to make it out of the grief and it was really hard for me to come back to the groups and because I would, you know, I, somebody would just say something to me and I would be in tears.

Curry:

Oh, I really felt for you.

Podcast Linda:

You have come such a long way, though, and I mean I, yeah, I can cry in this second still, but and I at first, especially the Monday, friday groups I haven't been back to the spouses one yet and I'm hoping to go back because I keep getting messages from people when they come back. Because I've lived through it and I can share, you know, I can share what, what I live through, you know, and I wish there were people when I was attending this best as only group that lived through it. You know, to give you know every everyone's different, but when you're towards the end it's kind of the same story. It's just you know different chapters maybe, but it's kind of the same story.

Podcast Linda:

And it was really hard for me. I mean, for all of that first year I was hit or miss if I would come to a meeting. I, yeah, I, I didn't think I was going to make it where I am today, but then I found coming to the groups was better for me than not coming to the groups and it helped. That helped that I helped start them. So I had that little bit of guilt.

Curry:

I was going to say it's a shame that we had to start a widow slash widow or group, but but you have taken the reins on that and run with it and you're doing a fantastic job. Like I said, I hate that we had to start that group, but you know this, this last year has been a really hard on our group. We've lost quite a few members. Yeah, yeah, it's just. It's just really a shame. Some of them hung in there a long time.

Podcast Linda:

Yeah, and and just for you to know, because Bill and I have been talking that we think that Bill's going to consider doing a widow or group, just just for the men and the you know, and then I will run the widow group just just because it's.

Podcast Linda:

You know, if certain things want to be talked about, I think it'd be more comfortable if the other Definitely the male or female wasn't in the group.

Podcast Linda:

So I was talking to him about doing that because I can, you know, I can see how that no-transcript I'd keep people from sharing some things that they want to share.

Podcast Linda:

But if you, I mean, I think maybe once a month we get someone to come into one of the meetings who is, I think usually it's a Thursday group, sometimes it's the Monday Fridays, where they're just diagnosed and they're just in denial and there are people in the group who came into the group feeling the same way and, like our friend Tom, we give this to the new people, tom's. We give Tom they're a number and he calls them and it's just hearing it from somebody else who's been in your shoes. I mean that's Again, I'm kind of how to come back to the groups, because you and I started them and it wasn't fair for me to just dump everything on you. But just from hearing it from people that have been through it, which I wasn't where I am today but, and I think it's a little bit blurry I'm pretty sure we did a podcast shortly after Jim died, where I explained everything and I just.

Podcast Linda:

Yeah, I'm gonna tell you what I said and I remember crying through it and afterwards I would like I don't vaguely remember doing it, but I figured it was gonna help people, especially with the hospice experience, to be educated with that. So it's, Bill, you're kind of like where I am let's do something positive with this where we have this terrible thing that happened. But we can.

Curry:

Yeah, linda, you have come a long ways. You really have, and I know it was hard on you, but you've done really good. You've done real well.

Podcast Linda:

Yeah, I can tell you it's. Sometimes the one little thing will set me back and it's just. It's a process, that's for sure. But doing this keeps me busy, so keeping busy is a good thing.

Curry:

Yeah, it is. I've got to tell y'all. I told y'all where I met Linda, zipulu's Jim, and I told y'all where I met Sam, and I've now had told y'all about meeting Bill and it's just a feeling you really can't explain. Bill gives a good hug, I guarantee you. Yeah, but Bill, I want to thank you for coming over and seeing us.

Bill S:

I enjoyed every minute of it and really it was a highlight of my last year and I'm anxiously awaiting getting back, hopefully between before September. Yeah, good deal.

Podcast Linda:

So before we ask Bill if he has any final words of wisdom, just I'm thinking maybe the next podcast we record Carrie is about. We talk about September.

Curry:

Okay.

Podcast Linda:

That's all. I'm going to leave it out there because we're working on something here behind the scenes for, I'll just say, an event in September for people to attend. So we're ironing out a few of the details and then maybe next week's podcast will just be talking about the event that we're working on. So just leaving that there for everyone.

Curry:

Which Bill is involved in too, and he has been a big help.

Podcast Linda:

Yeah, yeah. I want to give any final words of wisdom for our listeners that we haven't talked about yet.

Bill S:

About. The only thing I can say is to hang in there. That's all you can do. You'll cry, you'll pray, you'll do everything under the sun, but hang in there. What helped me is I just kept reminding myself that this life ain't nothing but a journey, and it's just a journey to get me to the next one, and it's just a stepping stone. So there's life after duty. There are honestly, I didn't think there would be, but there is. So hang in there. Don't ever give up. Quitters never win. Winners never quit.

Podcast Linda:

Yeah, yeah, and thank you for that. And I'm just going to chime in and say for the caregivers once, when the day comes that you're on the other side, consider still staying on the pages and helping everybody still in the journey, because it really means a lot to the people.

Curry:

It really does, it really does yeah.

Podcast Linda:

So again, we are going to have a big announcement, hopefully well I don't know maybe we can get it two podcasts out this week to make up for being a little late last week. I'm going to blame that on you, kerry. Yeah, it was my fault, it was your fault. This time I'm like I'm blaming it on you. This time it's not my fault.

Podcast Linda:

So just stay tuned. We're going to definitely have everything posted in details on the Facebook pages and then, once it's, we just don't want to announce until all the kinks are ironed out, because the teacher and me, everything has to be all planned out before we, because we mentioned, but if it was up to me, I'd just blurred it right on out, right, which, which?

Podcast Linda:

which we shared it In one of the support meetings, and it was like all these ideas coming and you should this and you should that. I'm like no, this is why we have to plan it, and then you know we'll have it all planned. Yeah, so just don't blurt it out, mr.

Bill S:

Sounds like a while.

Podcast Linda:

Yeah, yeah, so not don't even think about it. All right, bill, I want to thank you for coming on and sharing, you know, the good information that you were able to share and how you dealt with some of the things that you and Linda experienced. It's really going to help a lot of the caregivers, for sure.

Curry:

Definitely, folks. That's all we have time for this week. We can't thank Bill enough for coming and sharing your experiences with our listeners. Bill, please remember, we want all of you to be a part of our podcast series and share your thoughts on topics you want to hear about. We provide our email address below in the episode description, but please feel free to send us an email with topics you want to hear about or topics you want us to explore. We always love to hear your feedback, whether it be good or bad.

Podcast Linda:

Yep, and we cannot thank you all for supporting us and to keep the podcast going as we continue to share and learn from and with one another. And remember that we are doing this podcast for all of us and we really appreciate you tuning in each week. We just hit we just hit over 50,000 downloads last week, which is mind blowing, sadly mind blowing, but thank you for everyone who continues to be patient with us when we can't get one off every Wednesday and that continue to listen.

Curry:

Yeah and folks, as always, we'll continue to post the link for the podcast each week for you and my Facebook group, Our Journey with Lou and Body Dementia, and on our Lulie Body Roller Coaster podcast group page, as well as many other groups. Thanks for joining us.

Podcast Linda:

Until next week. This is Linda.

Curry:

And Curry Dining Off.

Lewy Body RollerCoaster Podcast Update
Caregiver Strategies for Alzheimer's Diagnosis
Supportive Peer Group Benefits and Wisdom
Weekly Podcast Updates in Facebook Groups